Neurological Alliance Patient Experience Survey is Launched

The Neurological Alliance (NA) has announced that its third biennial patient experience survey was launched on 17 October 2018 and will be open until 17 January 2019.

The NA is the collective voice for 80 organisations working together to make life better for millions of people in England with a neurological condition.   Its mission is to raise awareness and understanding of neurological conditions to ensure that every person diagnosed with a neurological condition has access to high quality, joined up services and information from their first symptoms, throughout their life.  Headway North Cumbria is a member of NA Regional Group, Cumbria Neurological Alliance, which was formed in November 2013 to bring together all the charities, organisations and individuals with an interest in neurological diseases and services in Cumbria.

The patient experience survey is the NA’s flagship project.  It enables the NA to understand what’s good, and what’s poor, in people’s experience of health services and social care services in England.  It uses this information to campaign for much needed improvements to these services.  This year it expects the number of responses and richness of the data to be better than ever before.

The on-line survey touches on many aspects of living with a neurological condition.  It starts with questions on what condition(s) a person has, and the extent to which their condition affects their quality of life.  It then goes on to pose questions about people’s experience of diagnosis, the information they received, their treatment and care, whether they were offered support for their mental wellbeing, their use of social care services.  It also asks about respondents’ employment situation, and their receipt of welfare benefits.  Survey responses are completely confidential although it does ask people to give their post code so that it can be used to map location to local health services, as it is hoped to be able to break results down by regional Sustainability and Transformation Partnership (STP) areas, for regional influencing purposes.  The survey may take up to 25 minutes to complete.

Headway North Cumbria members are encouraged to participate in the survey.  Further details can be found on the Neurological Alliance’s website, here.

The survey itself can be found here.